Latest News

Pre-Doc Preparatory Program (P³) in Translational Research

Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and translational research?

Rare Research Report: January 2025

January 29 2025

Rare Research Report: December 2024

December 18 2024

Rare Research Report: October 2024

October 24 2024

Eosinophilic Gastrointestinal Diseases Over Time: What We’re Learning from a Natural History Study

July 22 2024

Podcast: Eosinophilic Gastrointestinal Disorders: A New Path

April 25 2024

Rare Research Report: March 2024

March 22 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.