Resources for Patients and Families
Understanding Eosinophilic Gastrointestinal Diseases
In collaboration with two of CEGIR’s partner Patient Advocacy Groups, APFED and CURED, we’ve developed guides to understanding the following eosinophilic gastrointestinal diseases:
Learn how you can improve your quality of life as a person with EGID.
The ABCs of EGIDs
We partnered with Shire-Takeda Pharmaceuticals, NASPGHAN, and the NASPGHAN Foundation to create The ABCs of EGIDs, a series of 26 webinars divided into topic areas such as the basics of research processes, study of rare diseases, engagement of patient advocacy groups, and cutting-edge information on EGIDs.
Eosinophilic Esophagitis
This informational website from the American Academy of Allergy, Asthma & Immunology provides an overview of Eosinophilic Esophagitis that covers symptoms,diagnosis, and treatment.
Eosinophilic Esophagitis: Updated consensus recommendations for children and adults
A panel of 33 physicians offer recommendations the following areas of EoE: diagnostics, genetics, allergy testing, therapeutics, and disease complications.
Guidelines for the diagnosis and management of food allergy in the United States: report of the NIAID-sponsored expert panel
A panel of 33 physicians offer recommendations the following areas of EoE: diagnostics, genetics, allergy testing, therapeutics, and disease complications.
ACG Clinical Guideline: Diagnosis and Management of Eosinophilic Esophagitis
Dellon ES, Muir AB, Katzka DA, Shah SC, Sauer BG, Aceves SS, Furuta GT, Gonsalves N, Hirano I. ACG Clinical Guideline: Diagnosis and Management of Eosinophilic Esophagitis. Am J Gastroenterol. 2025 Jan 1;120(1):31-59. doi: 10.14309/ajg.0000000000003194. Epub 2025 Jan 2. PMID: 39745304.
Joint ESPGHAN/NASPGHAN Guidelines on Childhood Eosinophilic Gastrointestinal Disorders Beyond Eosinophilic
Papadopoulou A, Amil-Dias J, Auth MK, Chehade M, Collins MH, Gupta SK, Gutiérrez-Junquera C, Orel R, Vieira MC, Zevit N, Atkins D, Bredenoord AJ, Carneiro F, Dellon ES, Gonsalves N, Menard-Katcher C, Koletzko S, Liacouras C, Marderfeld L, Oliva S, Ohtsuka Y, Rothenberg ME, Strauman A, Thapar N, Yang GY, Furuta GT. Joint ESPGHAN/NASPGHAN Guidelines on Childhood Eosinophilic Gastrointestinal Disorders Beyond Eosinophilic Esophagitis. J Pediatr Gastroenterol Nutr. 2024 Jan;78(1):122-152. doi: 10.1097/MPG.0000000000003877. Epub 2023 Jul 4. PMID: 38291684.
Cow’s Milk Elimination Diet: Where to Start
Carina Venter explains how to successfully navigate a cow milk elimination diet. Venter is now Associate Professor of Pediatrics, Section of Allergy and Immunology at the Children's Hospital Colorado and University of Colorado Denver School of Medicine.
Cow’s Milk Elimination Diet: What to Eat Instead
Former Research Associate/Dietician at Cincinnati Children's Hospital Medical Center with the Cincinnati Center for Eosinophilic Disorders, Carina Venter, explains how to replace milk in your diet with comparable foods such as soy, pea, and nut milks.
One Food versus Six Food Elimination Diet Therapy for Treatment of Eosinophilic Esophagitis: A Multicenter Randomized Clinical Trial
Empiric elimination diets are effective for achieving histologic remission in eosinophilic esophagitis (EoE), but randomized trials comparing diet therapies are lacking. We aimed to compare a six food elimination diet (6FED) with a one food elimination diet (1FED) for treatment of adults with EoE.
Cow’s milk is one of the most commonly implicated dietary triggers in EGIDs, and elimination of cow’s milk protein may improve inflammation and symptoms in some patients. However, milk is not the exclusive cause of EGIDs, and responses to milk elimination vary. Any dietary exclusions should first be discussed with the patients specialty care team.
